Wednesday, April 20, 2011

Looking forward to a sunny day

Now the pain has absorbed my whole body....I can barely type this message let alone find a comfortable position to sit in......and forget about sleeping.  I am going to see my doctor on Friday, but that is not soon enough.  It is weird, in the past when I have experienced pain, I always knew that a sunny day was right around the corner.....like the saying "this too shall pass".  But tonight, I am in a dark place and that sunny day seems to be an unobtainable goal....maybe it is because at night, you feel very alone.  Just you, the glow of your TV and the pain.    
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5 comments:

  1. Bruce PottsApril 20, 2011 at 7:52 AM

    I sm right with you on the pain, I think with me it is battery issues as I feel very little help from the DBS right now, taking a lot more meds. My appt not 'til May 17th. Had a nightmare-hallucination filled night, which kept Kyle up while I thrashed about, yelled out, et cetera. Lucky he has the day off today, but I think from now on it may have to be separate beds for swhile so he can get the rest he needs. Good luck with your pain-I feel it, about eight out of ten and severe rigidity as I type this. P.S. How many years have you had Psrkinson's again? I was diagnosed in 2001 after a few years of depression and horrible panic attack like symptoms. Then had my DBS done in 2007. They say battery life is normally around five years, so I msy be closing in on the end of this battery. Best regards, Bruce.

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  2. asmithconwayApril 21, 2011 at 5:38 PM

    I got diagnosed March 2010 and went into DBS surgery in April 2010, but had symptoms for years before that. Do you have the clicker to check your battery? It is the device they give you at surgery to see if you DBS is on or if the battery is dead. No seperate beds! That is so sad that you can't sleep next to Kyle...but I understand, sometimes I just go out on the couch so I don't keep my hubby up!

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  3. Bruce PottsApril 22, 2011 at 7:20 AM

    Thanks, Allison. I'll check it, though I always get confused which indicator light I'm looking for, etc. All I know is I'm turned up as high as I'll go on both sides and have worse rigidity and walking trouble than I've had in awhile and taking a lot more meds. Please let me know how your programming session goes. Here's hoping we are both back to our respective baselines soon!

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  4. Bruce PottsApril 30, 2011 at 6:46 AM

    Hey Allison, hope you are doing okay and that that sunny day is on the way! I miss your blog posts. Take care. Bruce

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  5. asmithconwayMay 1, 2011 at 10:03 AM

    Thanks Bruce!!

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